***UPDATE FROM UCSF***

The beginning to the TPIAT Procedure.

On Monday February 11th I woke up groggy, it was only about 5am and we had a full day ahead of us. I nuzzled back under my blankets to feel the warmth. It was nice, from my feet all the way to my ears were covered with mounds of blankets and two heating pads hidden under the pile. I heard Matt’s voice saying “hey love, it’s time to get up. We have to leave in an hour.” I got up and sat down with Matt for a few minutes. It was very cold. We were both wrapped in two blankets each. We turn the heater down and sometimes off, we also sleep with one of the windows open. There is nothing better than being cold and wrapped in blankets.

I was feeling really well, I was excited for our appointments. I straightened my hair, put on a little make up and was ready in no time. We had a check list of everything we needed to bring. It was going to be a long day, so we had to make sure all my medications were packed. I had to fast from 10pm Sunday night till roughly 2pm on Monday due to the diabetes test.

As we were leaving the house, we didn’t even get out of the court and I was throwing up. Matt put the car in reverse and ran into the house to get me a suppository for the nausea. Shortly after I stopped vomiting, we were on our way.

The drive to UCSF is usually fairly smooth, however there was bad traffic, so we took another route. This route though beautiful had very rough roads with a lot of turns. Matt immediately apologized for taking that route, but I knew it was the best option.

We get to UCSF and check into the lab to have my blood drawn for the diabetes test. After a couple hiccups I was in the back getting my first draw done. Right after I had to drink 1 ½ Boost drinks. Now for those who don’t know I can only handle 2g of fat or less. Well this drink had 7g per bottle. It wasn’t long before I started to feel just miserable. While we waited for the next draw Matt filled out the paperwork and I slept.

Finally, we were done with that and had to meet with the Endocrinologist. That appointment went fairly well. I did break down and cry, not because I was scared or nervous, I just felt miserable. At the end of the appointment I told the Dr I thought I was going to be sick. Moments later I was on the floor vomiting again.

We then moved on up to the 7th floor which is the transplant center. We checked in and again I laid down and tried to sleep. They called us back and took my vitals, then they gave me a pillow and blanket to lay with in the office while we waited. I had an awful migraine, so I was able to give myself a shot, within 20mins I was starting to feel better.

We met with the surgeon who was just wonderful. He was very to the point but didn’t rush. Matt and I felt very confident walking out of his office.

Yesterday February 12th, we met with the dietitian. After she looked over my labs and we discussed how to eat, she told us we are on the right track and my labs look great. No sign of malnutrition. One thing however, I need to either stop losing weight or maintain where I am. I am sitting at 127lb. They don’t want me to get any lower.

Next Monday February 18th my case will be presented, and they will decide if I am a good fit for this procedure. As soon as I get the information, I will post it.

I appreciate all the calls, texts and messages over the past two days. This is a huge surgery and I have so many emotions surrounding it. Thank you everyone.







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